| Enacted in 1975,
the All Handicapped Children Act (Public Law 94-142)
was the first ever attempt to acknowledge and
support special education services in an academic
institution with the prime purpose of helping
children with disabilities. This was followed
by the Individualized Education Plan (IEP), which
perhaps served as the primary foundation for each
child's specific educational needs. One may thus
observe that the salient aspects of these legislation
have paved the path for school-age children with
speech-language problems. In turn, researches
and developments in medical sciences have provided
each child a benefit that suits his or her particular
educational and learning requirements. As with
other special children, those suffering and diagnosed
with Down syndrome are included in these specialized
services, and evaluated through a set of guidelines,
which focus on the speech and language treatment.
A pivotal aspect is the inclusion of immediate
family members who play a central role in the
entire treatment process. As also mentioned in
the opening lines, the Individualized Education
Plan (IEP) begins when the child reaches the age
of 3 years, and is termed as remediation model
of education. The educational plan for those from
birth to the age 3 is called the Individualized
Family Service Plan (IFSP), and represents a prevention
model. The following paper will however strive
to present the various effective modes of teaching
oral language to students with Down syndrome.
Introduction
Children suffering from Down syndrome exhibit
a number of complex challenges for both the parents
as well as their teachers. When the same child
also has speech and language problems, these challenges
take on an extraordinary appearance requiring
for a truly comprehensive set of approaches to
treat both speech and language disabilities. The
following review of different literature will
thus focus on the effective means to teach oral
language to students with Down Syndrome, as well
as strive to cover the treatment of speech and
language problems in children with Down Syndrome
in a number of different ways. Thus, the principle
subject of teaching oral language to students
of Down syndrome will be covered from the historical
perspective, legislative, financial influence,
as well as from the service delivery point of
view.
Characteristics of Children With Down
Syndrome
Before attempting to present the above
said different perspectives, measures and criteria
for teaching oral language to students with Down
Syndrome, it would only be imperative to present
some of the salient characteristics found in children
suffering from Down Syndrome.
A brief historical background on children suffering
from Down syndrome shows that originally it was
found that children with Down syndrome showed
tendencies to develop language similar to normal
children, yet at a comparatively slower pace.
The recent findings however have changed this
earlier findings, and have revealed that there
is significant evidence to suggest differences
in both the language product as well as the language
learning process (Stoel-Gammon, 1990).
One of the first characteristics observed in children
with Down Syndrome shows that spoken language
is generally found in children aged between 2
and half years and 4 years, with exceptional cases
of children uttering words as early as 18 months.
(Rondal, 1988b)
Secondly, one may also note that at age 3, an
average child is expected to utter up to 18 words
with a range from 0 to 85 words, which may be
comparable with a normal child of 18 months. (Mervis,
1990; Rosenweinkel, 1988)
Third, findings by Mervis in 1990 have noted that
children with Down Syndrome fail to enter what
we normally assume as a 'vocabulary spurt' at
this mental age, thus further delaying the onset
of syntax required in the learning of the language.
Comparatively, normal children of this age have
the tendency to catch on new words every day,
and hence their volume of vocabulary increases
by each passing day.
Another study by Stoel-Gammon in 1990-1992 showed
that normal children exhibit comprehension skills
with the development of mental age, a case which
is directly opposite in children with Down Syndrome,
hence the slow pace of both syntax and vocabulary
in the latter group of children. Similar studies
also reveal that vocabulary and communicative
functions are observed to develop at a faster
pace as compared to the level of absorption and
comprehension of syntax. (Stoel-Gammon, 1992;
Fowler, 1990).
Other studies on the study and comprehension
of syntax reveals that syntax has no set pattern
of growth, and may vary according to each child.
For example some children will continue to develop
syntax from childhood to adolescence, while other
may show extraordinary development of syntactic
structures. This also implies that mental age
has no bearing on the absorption of syntax development,
and may not be considered a sound predictor. Furthermore,
researches have also failed to pinpoint or categorize
a specific period of language development, which
differs with each child. (Fowler, 1990).
Further studies on the anatomy and physiology
of the children with Down syndrome, as noted by
Rondal in 1988a show that there is frequent use
of routines or stereotyped expressions in speech.
The same studies also show that the affect of
Down syndrome on the anatomy and physiology of
the children too undergoes significant changes.
For example there are significant changes in the
intelligibility of speech including the development
of small oral cavity, an enlarged tongue, an elevated
larynx, hypotmia of the speech muscles, and the
underdevelopment of the sinunes. The physical
and etiological appearance of the brain too witnesses
significant changes as the Broca's area and the
cerebellum is both smaller compared to the normal
children of similar age. These underdevelopment
of both Broca's area and the cerebellum in turn
lead to deficits in cognitive and processing abilities
as well as poor development of motor speech coordination.
(Rondal 1988a, 1988b)
Studies carried out by Swift and Rosin in 1990
show that children with Down Syndrome also exhibit
difficulty in processing sequential information,
an aspect common in both oral-motor planning as
well as control and language (Swift & Rosin,
1990).
Some of the commonly observed findings by an equally
different number of researchers have revealed
that some 60 - 80 percent children suffering with
Down Syndrome have hearing deficits, while 20-50
percent have recurring otitis media. The children
under discussion exhibit a greater percentage
of visual-motor and visual-vocal modalities as
compared to their abilities in auditory modalities.
Other findings show that personal eye contact
as compared with referential eye gaze results
in a less response language modeling from both
parents and teacher, in turn demanding more emphasis
on teaching to the same children. Observation
between parents and children with Down syndrome
also reveals that there are more spatial and focal
set of vocal communications, in particular between
a mother and the child, as well as an increased
tendency to use signs and motor imitation. This
also shows that there is a faster reaction time
for visual communication as compared to auditory
signals (Pueschel, 1987; Gibson, 1991; Berger,
1990).
Speech and Language Treatment For Varied Group
of Children with Down Syndrome.
From the above brief description of characteristics
inherent in children with Down syndrome, one may
observe that each child inhibits a particularly
unique set of personality, and thus demands therapy
according to his or her specific nature of deficiencies.
It is therefore essential for teachers and parents
alike to consider and suggest as well as design
specific programs for each child separately, so
that maximum benefit may be derived from the time
and effort spent strengthening speech and language
treatment programs.
One may also observe that though speech and language
are two of the most sought after skills needed
by an average individual, yet these aspects takes
on a particular importance in case of children
with Down Syndrome. Hence the need for a more
comprehensive set of evaluation and assessment
of communications skills, which also includes
speech and language. Other skills that are and
play an affective role in the treatment of children
with Down syndrome include facial expressions,
smiles, gestures, pointing, high five signs, and
alternative systems including sign language and
computer based systems. It would only be true
to accept that both children and their parents/teachers
can best understand as well as understood, whey
they interact with each other in an environment
that best suits the adaptability and comprehension
skills of children under study. This is indeed
possible through coordinated efforts by the parents,
teachers, and members of the community, whether
in the classroom settings, in the community, or
at the recreational facilities.
Another vital aspect in the teaching of children
with Down syndrome is the inability or absence
of a single and pre-defined set of criteria that
may be applicable for all the children with Down
syndrome. This is also true for speech and language
problems, as also the subject of our present paper,
where there exists no single pattern for teaching
that may be equally applicable to all the children.
For example, there are a number of children who
have difficulty in expressing their thoughts;
hence their inability to focus on language skills,
yet at the same time the same category of students
will exhibit an extraordinary set of skills when
it comes to understanding and comprehending speech.
Similarly other children with Down syndrome have
strong receptive language skills, yet lack the
requisite skills in expressing the same language.
In similar context, there have been studies on
children who have shown greater ease in understanding
vocabulary, while at the same time these same
children expressed difficulty when it came to
grammatical aspects of the language. Similar problems
are faced with certain children who have difficulty
in understanding sequencing of sounds of words.
Then there are certain categories of children
who face difficulty in comprehending both speech
as well as articulation, while others face problems
in fluency. Thus, there are children who may utter
words in short spurts, while others may continue
and have long conversations. All this then leads
us to deduce that there is no unique set of problems
in either speech or language which may categorized
and treatment offered to that respect. Since each
child has his or her own set of individual traits
and set of problems, there is an ever-greater
need for understanding their specific problems,
and addressing them separately and accordingly.
Hence, one may observe that both the speech and
language treatment programs need to be designed
with respect to the individual needs and careful
evaluation of each child's communication patterns
and requisite needs. In this context, the assistance
and help of parents, teachers, and other members
of the family can play an important role in the
comprehensive treatment for such children suffering
from Down syndrome. The said groups can duly come
forward and positively contribute towards the
communication needs of the respective child, in
turn making him or her move towards a healthy
life style. The role of speech-language pathologists
too play an ever important role as they can guide,
inform, as well as assist the child in upgrading
his learning potential to reach a level of effective
communication. For most of us, communication may
be taken for granted, yet for children suffering
from Down syndrome, communication plays an important
part in their daily lives, and the only way to
instill this vitally important skill is to practice
and re-inforce communication as part of a daily
life ritual. Only then can one truly accomplish
the strenuous task of teaching a child with speech
and language problems, while also addressing the
respective child's physical, medical, emotional
and psychological needs at the same time.
Another aspect that demands equal attention during
the treatment of speech and language problems
in children with Down syndrome is the need for
creating a relationship between the child's educational
setting, with that of his or her communication
needs of the classroom and the curriculum being
taught. In addition, this relationship should
also be expanded to encompass the various activities
of the community such as joining a religious,
or scouting. The inclusion of such activities
outside the parameters of home and school also
provide immense benefits in the learning process
of such special children, as they provide for
due promotion of interactive communication with
the outside world as well as serve as models for
new and effective communication partners.
A Comprehensive Speech and Language Treatment
Program
Numerous studies by equally different number of
researchers, psychologists and pediatricians have
concluded that since there is lack of information
of a pre-defined or a set pattern of treatment
for addressing the needs of children with speech
and language problems. There is a requirement
of a truly comprehensive set of speech and language
treatment strategy/program, which can cater to
majority, if not all the children suffering from
Down syndrome.
One of the first findings towards this comprehensive
set of speech and language programs revealed that
the most important intervention begins at home,
and during the period when the infant is born
to the period when the infant commences to utter
the first few words. In this respect, studies
carried out by Kumin et al in 1991, and in coordination
with the Loyala College coordinated a set of programs,
which involved parents and children, and where
therapy sessions showed a cent percent turnover.
During these therapy session, parents and clinical
advisors provided by the Loyal College interacted,
and discussed each single activity of their respective
child. These families were then provided with
a set of skills to be practiced at home, so that
the speech and language therapy sessions initiated
at the college may be continued within the ease
and vicinity of the homes.
In one of the first lessons provided by Kumin
et al in their writings of 1991, it was suggested
that treatment programs should be pursued with
an emphasis on sensory stimulation. This includes
for example such aspects as provision of activities
and experiences to assist children in developing
their auditory, visual, as well as tactile skills.
This also included such skills as sensory explorations
and sensory feedback and memory. As a result of
such exercises, the studies revealed that the
children learn to differentiate between the sounds
of a bell for example, or the sensations of touching
'velvet or sandpaper'. An important aspect is
to focus on the hearing status as the child with
a Down syndrome is at a higher risk for developing
otitis media with effusion. (Roberts and Medley,
1995).
In yet another recent findings by a group of
researchers, there was a strong relationship observed
between otitis media with effusion (OME), or fluid
in the middle ear without any signs or symptoms
of ear infection, language development, and academic
achievement in typically developing children.
These were found to be somewhat responsible for
the inordinate delay in language that one may
observe in Down syndrome. To overcome such problems,
the pediatricians, otolaryngologists as well as
the audiologist can monitor and assess the hearing
status, and accordingly treat fluid accumulation
in the ear. (Gravel and Wallace, 1995)
It need not be emphasized that the mode of learning
is perhaps most successful, where thee is ample
evidence of matching a child's preferred learning
style, including both perception and processing.
However, with children suffering from Down syndrome,
the child has to move a step ahead and utilize
his or her strengths in the visual modalities.
This implies that the use of gestures and signs
by parents and teachers prior to the linguistic
period as well as during the learning stages serves
as a 'bridge' for the respective child's transition
to speech. Numerous researches have thus concluded
that parents must make use of the sign language
introducing it in the first year, and initiate
for stopping the same when the child reaches the
age of five years. It was further emphasized and
recommended that the 'Total Communication Approach'
should use the sign language through the first
year, as also reiterated in the preceding lines.
This should be followed by the use of oral responses
together with the signs, and finally ending by
allowing the child to use the actual words (Kouri,
1989; Simons Derr, 1983; Rosenwinkel, 1986; Swift
and Rosin, 1990; Kumin, 1994; Jago et al, 1984;
Clarke et al, 1986).
Further studies and importance of oral language
preceded with signs showed that children suffering
from Down syndrome and aged between 1 and 9 years
yielded a number of positive results. For example
parents of children between the stated years showed
that more than 87 percent strongly recommended
the use of signs, and that the signs proved to
be beneficial. Some of the reasons cited for this
immense percentage of success in parents using
signs included the fact that signs provided an
impetus for oral language. It also provided for
means of communication as well as a positive measure
for alleviating the child's moods of frustration.
It was further noted that when the parents stopped
using the signs, it was simply because of the
fact that their children had developed speech
skills, and that they had become more intelligible.
This also provided significant evidence that signs
served as a bridge to 'speech'. Though visual
stimulation did provide for an impetus for faster
receptive growth of language skills, the use of
signs indeed reaffirmed its place as an important
tool in the transition of a child move towards
an environment of speaking populations. (ACN,
1992; Rosenwinkel, 1986).
Assisting Parents Make the Best Choice
The above studies on the importance of using sign
language, followed by oral language and then moving
on towards speech no doubt bears a distinct and
clearly defined path for majority of the children
suffering from Down syndrome. Yet, by no means
is this the only method, and certainly not one
that may be rejected altogether. As also proven
by researches in the above section, each child
exhibits a unique set of traits and characteristics,
the assessment and evaluation of which is left
to decide for by the clinicians, pediatricians,
and physicians, as well as the parents. Hence,
if the evaluation so demands that the child be
pursued with a 'Total Communication approach',
one that gives emphasis to sign vocabularies rather
than oral vocabularies, there are certain rules
to that respect.
However, it is most appropriate that parents,
teachers and clinicians pursue a three-pronged
strategy. These are for example, the use of signs
must be introduced at an early age with all children.
Or that the decision of using either sign language
or oral language must be pursued on an purely
individual basis keeping in view the child's respective
needs. Or, lastly, strict compliance and adherence
must be made for the use of oral-only approach.
It is therefore the decision of the said caretakers
to best decide, the appropriate course of action,
and one that best suits the needs and abilities
of the respective child.
To provide some evidence, as to why signs may
not be at all suitable for children with speech
and language problems, one may assess that a child
may be in need of more frequent communication,
thus bypassing the primary stage of using sign
language. Second, parents may be willing to spend
extraordinary attention and time, in turn providing
their children general facilitation skills, once
again bypassing the need to pursue a sign language
strategy. These also prove that overall circumstances
surrounding the choice for an appropriate mode
of treatment for children, and teaching them skills
to overcome their speech and language problems
is truly an uncertain area of expertise, best
judged only by the parents, teachers and physicians
of the respective children.
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